This section is dedicated to healthcare professionals, end of life specialists and carers who work within this difficult sector. We have written a number of resources that you may find of interest including those found on the 'legacy builder area'. You may also be interested in viewing the charity and not for profit initiatives we have ran to date.
We are continually growing our services and our offering. We partner with charities, healthcare professionals, not-for-profits, hospices and funeral directors to do so.
If you would like us to write a tutorial for a specific area online please let us get in touch. We welcome the sharing of ideas and will always credit the contributor and the original source.
Supporting HCPs, chairities and organisations
We support the healthcare, funeral, care, charity and hospice sector through diffusion, collaboration, consultancy, workshops, conferences and partnerships. If you would like to discuss how we could help support the people you serve get in touch. Please be aware that we only work with organisations we deem as an ethical. All of our tutorials and support material is independently written and our content will always be free. Any external content provided is independently reviewed and moderated.
- Dying Matters Awareness Week
Each year we take over a pop-up space in London and run a series of events from it. In 2014 we helped charities and organisations to 'take over' the space for periods at a time. This enabled them to engage with the community on Camden High Street (a very busy high street in London).
A list of partners involved with our Dying Matters Awareness Week popup shop in 2014 can be found here
- Transition in Palliative Care, Study Day
We recently provided a virtual seminar about digital death and digital legacy at Tŷ Hafan's Children's hospice. It supported a seminar given by Dr Mark Taubert.
More information including the video of the virtual seminar click here
Free resources for HCPs, Funeral Directors and End of Life Care professionals to download, print & distribute.
Below are two resources that we have made available for free for HCPs, Funeral Directors and End of Life Care professionals to read, download, print and distribute.
Five steps to sort out you Digital Legacy today
In May 2015 we released a new resource to help the general public think about, address and start sorting out their digital legacy.
This is the first ever printed support material (that we know of) that helps the general public address this increasingly important area. Five steps to sort out your Digital Legacy was first made available during Dying Matters Awareness Week 2015. Printed leaflets were delivered and distributed across the UK & Wales. Five steps to sort out your digital legacy today is available in both English and Welsh to help ensure the widest possible reach across the UK.
Healthcare Professionals, Funeral Directors and End of Life Care Professionals are welcome to download this leaflet, print and distribute to those they serve for free. Simply download the resource in the relevant language below.
Download and share the flyer in English (PDF) by clicking here
Download and share the flyer in Welsh (PDF) by clicking here
Macmillan Primary Care Conference
In November 2014 we put together and printed a leaflet for the Macmillan Primary Care Conference. It supported the seminar 'Can we Palliate Social Media' provided by James Norris (CEO, DeadSocial) and Dr Mark Taubert (Velindre NHS Trust & BMJ Editor). This resource and list of tasks to are specifically for GPs and those working within Primary Care. It is available for HCPs who attended the conference (login required).
Workshops and Conferences
- Health 2.0, Europe 2014
Digital death and digital legacy issues are often not addressed or spoken about at healthcare and social science events. We try to engage with the general public, healthcare and charity sectors in as many ways as possible. This includes speaking at events, running workshops etc. To view our upcoming speaking engagements click here
Photo: SHHHH Topics.... Overcoming Addictions, Grief, and Stress (Moderated by Pascal Lardier - Health 2.0)
DeadSocial have written support material around the areas of digital death and digital legacy for a range of other charities and organisations. Content ranges from How to host a Dying Matters Awareness Week to digital bereavement support material for the children's charity PlanIf.
- The Digital Legacy Conference
The 1st Annual Digital Legacy Conference (#DigitalLegacyCon) took place at University College London Partners (UCLP) on the 23rd May 2015. It brought together a range of professionals, academics and business professionals to help address areas relating to death and dying in today’s ever increasingly digitised world.
Dr Mayur Lakhani: GP, Chair of the National Council For Palliative Care & Dying Matters
Due to its demand and success the Digital Legacy Conference will now be an annual event. We invite those with relevant working experience in this field to get in touch. More information about the conference can be found at: www.DigitalLegacyConference.com
- The ICCM Learning Convention 2015
The Institute of Cemetery and Crematorium Management (ICCM) were setup in 1913 to policy and best practice guidance to Burial and Cremation authorities, its Corporate members. DeadSocial presented the paper 'social media in death and bereavement' in the penultimate presentation in September 2015.
DeadSocial's paper presented at the ICCM Learning Convention. Further information can be found here
Raising Awareness in the community
We raise awareness both in the local and wider community by participating in local community projects as well as national and international campaigning.
The photo above shows James Norris (DeadSocial's CEO) speaking at North London Cares event at AgeUK Islington, London.
Legacy tasks that can be facilitated by carers, family members and healthcare professionals
- Downloading photos, videos and messages from social media accounts
- Tagging physical photos
- End of life and digital legacy tutorials
- Design a family 'coat of arms'
- Passing on your website or blog
Some wonderful external resources for Healthcare professionals
- Alzheimer's Society's Dementia Friendly Charter
- National Council for Palliative Care's Free downloads
- Macmillan's Health & social care professionals
- Dying Matters How to host a Dying Matters Awareness Week event (32 things to consider)
- Guardian 'Who Cares - Interactive Guide'
- British Medical Journal's Palliative Social Media
- Dr Kate Granger's 'A doctor & terminally ill cancer patient musing about life & death' blog
- Bereaved through substance use - Guidelines for those whose work brings them into contact with adults bereaved after a drug or alcohol-related death
Healthcare Professional, Hospice, Carer & Industry Engagement
If you have any questions or suggestions feel free to contact us. We will normally answer any questions submitted within 24 hours. We are keen to add value to your work when we are able to do so.
If you know of a great resource for healthcare professionals, carers and end of life professionals that is not included in the list above let us know.